We Welcome You
This site is dedicated to children and adults with special needs having Spina Bifida in India
“The tremulous flame becomes firm and steady with the help of a little support and is ready to fight the worst storm. What it needs is a caring hand to remove the dark shadows and illuminate the whole surroundings. “
We at ISBA offer the same caring hand.
A family of more than 120 members who are always there to help each other.
For many the words Spina Bifida must be new but for some it is familiar since birth, as it is a birth defect. Indian Spina Bifida Association is a nonprofit support group formed in 1999 for the first time in India run by the parents to connect parent to parent through a common network where parents can share their doubts and dilemmas among each other; which they have to face every day in bringing up an extraordinary child with special needs. Parents have a different way of dealing with their loved ones and it may serve as the answer to an unsolved question for other parent.
Individuals with Spina Bifida can also come forward and share their experiences with young members. They can prove to be a motivational force for the younger generation. Let us start sessions of teach and learn where each person has something to learn and teach from life which has taught them more than others.
What is Spina Bifida?
Spina Bifida is a permanently disabling birth defect. It is a Neural Tube Defect, and is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn’s back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord.
Most children born with Spina Bifida live well into adulthood as a result of today’s sophisticated medical techniques.
Let us all unite together to fulfill the dreams which our children dared to dream but due to lack of proper facilities, unable to accomplish them.