post surgery problem for tethered cord

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This topic contains 8 replies, has 3 voices, and was last updated by  VJ001 3 months, 4 weeks ago.

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  • #416

    VJ001
    Keymaster

    AN175,

    A member wants to contact you personally on phone. If it is convenient please update your contacts at ISBA. An urgent action will be appreciated.

    Regards

    #409

    IS188
    Participant

    Hi ,

    My baby currently 1year 10 month and he is able to walk without support. But his left leg week and unfortunately left foot move left side when he is walk. Due to that during walking time left foot not properly touch ground. we consult few doctor , and they suggested ankle tendon need to operate, through that he is able to walk properly. What will be success rate in this operations. Can any body suggest best doctor of that surgery.

    Thanks

     

     

    #400

    IS188
    Participant

    Good things my son is in good condition. Now he started walking also. But yeah left feet is not stable. But he started walking. expecting it will improve more. physiotherapy is going on. expecting there are no other surprise will come.

    #398

    AN175
    Participant

    My daughter also had detethering surgery at 9 months age at Fortis Gurgaon. She does not have any post surgery issues with gods blessings. She is trying to learn toilet training and has improved a lot with practice.

    Dr Rana Patir did the surgery for my daughter. For leg weakness you should consult a specialist physiotherapist. I think with some online research you can find in your area. For urine, with age as bladder control improves this should improve too. But you can consult a urologist also. Please do research before any further procedures, don’t blindly follow doctors advice since some can try to mislead you. All the best !!

     

    #345

    VJ001
    Keymaster

    Our member AK106 went to GB Pant hospital in Delhi. His child underwent two surgeries, including detethering. He was happy with the services and recommend others.

    Link to the site is given below

    http://gbpant.delhigovt.nic.in/

    #339

    VJ001
    Keymaster

    You should consult a physiotherapist – who will advise proper exercise to normalize your child’s activities. I will also send closely matching child’s parents contacts, so that you can connect.

    #338

    IS188
    Participant

    Before surgery there were no symptoms. Only on sacral region three close pits /dimple and lump there. We did MRI and found fat body link with spinal nerve. Lots of doctor even NIMHANS bangalore doctor suggested for surgery. As doctor view was problem will start when he will start walking. According doctor view we did operation.

    Yeah after operation he improved lots. After one month of characterization he started clear urine. But after remove is it weak stream.But not dribbling.  Left leg also improve lots which was completely not working after one week of surgery. He started crawling also. But still weakness are there. Except this two still no others problem recognize. I heard from different link exercise and medication will improve those. That’s why I am looking such doctor who can guide us to overcome those issue.

    #337

    VJ001
    Keymaster

    IS188

    Please let us know whether the condition of child improved after surgery or it has deteriorated. Why did you go for detethering at such young age. What were other complications. like manifestation of SB in thoracic or lumber region, Gait problem, incontinence etc.

     

    #335

    IS188
    Participant
    • My son currently 10 month. In the month of 8 tethered cord operated at Fortis Bangalore. Post surgery faced two major problem. Acute urine retention and left leg weakness. He is in catheter after 2nd days of surgery. After 1 month removed catheter and he is able to pass urine. But it is weak stream. Left leg also improved lots. But still weak. Due to this step of walk not proper. Currently we returned home town kolkata. Can any body help me to find best doctor who can help my child to overcome this problem or guide me properly.
    • This topic was modified 1 year, 5 months ago by  IS188.
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